I haven’t purposely asked certain questions on what is about to happen, so i appoligies for someone who is going through the same thing and is looking for answers.
This may be quite vague but to my knowledge this is what is about to happen.
I have been told that I have to have 6 months of chemo, now i believe that they do a CT scan after 3 months to see if it is working. I will keep a blog to let you know how I am feeling on this chemo, but i must admit, i am scared.
The last chemo took around 30 minutes to put into my system, this is going to take 2 days. I feel OK right now, so to hook myself for 2 days to make myself feel sick just seems strange. I am up and about right now, back at work and about to go on holiday to Prague, so to visualise someone one sat in bed, thin and hair falling out been sick, plugged into a machine seems very far from where I am but I may be in that state next week.
I know that they send a district nurse to our house to see if all is OK with the chemo, (mental note, i must tidy the bedroom).
The doctor said that some of the side effects are, hair falling out (which i am not that fussed about – i have just bought a flat cap so at least i will get money out of that) and feeling cold sensation in a different way (I may have to wear oven gloves when I get something out of the fridge, and I may not be able to drink cold drinks) but all in all, its sounds grim!
I have found a some inspiration on twitter! there is a young man (aged 13) called Josh Wilson (@SuperJosh) not only as he reoccurring brain tumor, but also neuromuscular disabilities, and his attitude is really positive, he is really amazing.
Also, I am starting hypnotherapy, the last time I had chemo I built an association with the hospital (even the car park), so when i smelt disinfectant i was sick, when i parked the car in a mulit story car park i was sick etc… so hopefully the hypnotherapy will take off the anxiety of this.
I am also having what is called nanoknife, I believe this is a new technology that electrocutes the tumor to kill it. I will let you all know how this goes too, it is not available on the NHS and will cost around £11000, but this is covered on healthcare (if you do call your private healthcare and they say they do not cover nanoknife, it may be because it is known as another name, all i needed was a letter from my surgeon.
I am also taking Kinoko gold AHCC
This suppose to work well with pancratic cancer, it is expensive, but if it works its worth it.
I am also making my own bitter melon tablets.
Well! I have my pre assessment tomorrow, and then 3 days in Prague, and then back for chemo. I am looking forward to Prague!